I miss little Rory, and haven't talked with her since my last posting.  We are still waiting to hear if she will have surgery or chemo this next round.
Last Saturday I finally ran on part of the Leadville 100 course, 33 miles!  It felt glorious to be on that trail, and to run better than i have up there before.  My asthma was a non-issue, my legs didn't burn and felt strong, my protein tablets were pasty and i ran out of water processing them on the way back - luckily the beautiful May Queen campground has drinking water!  Boy, was that a blessing, it was hot and the water levels up there are very low - perhaps Turquoise Lake is extra low as they are using the water to put out the giant forest fires going on in nearby forests. 
These are again reminders of some of the hurdles and challenges that Rory and her family are dealing with in moving her forward in her care - it sounds like constant negotiation, information and research, and attempting to get winks of sleep as this trooper of a girl has lots and lots of energy!
I am the Auntie who wears Orange (since that is the color i wore when i last visited in person), so I look forward to my next facetime session with Rory, wear i am sure to have on Orange each time so as not to disappoint!  Rory's favorite color is royal blue, so I am thinking the ribbons i fly may be that color.
G, and i may have to wear some orange along the way, which Broncos fans around here will appreciate.